Status: Health, Winter 2016

I think I'm writing again.  (Lord knows I need to do something different.  What I'm currently doing isn't working.)

I feel like  I've been more or less on the brink of a nervous breakdown since before Thanksgiving. (Dramatic much, why yes, how did you know?)  Little things are helping keep it at bay, but they're sandbags and the levy wall really, really wants to break.  If that happens, I'm not sure I can do much to keep the flood out of the house.  If you know what I mean.

For the first time in 3 years, I'm actually doing pretty well physically, for winter.  A real surprise considering we're in an El Nino year.  What with me being the delicate flower I am, and the damp & cold that El Nino waters bring I would've predicted major walking issues.  So far, I'm holding it together.  I'm not thriving by any stretch, but I'm walking on my own & my family's existence seems to be flowing fairly well.  Most would call that a big win. Considering how low I've set the bar, you would think, I would be part of that most; but there's a lot of things conspiring to push me down & it's hard to manage it all.  In Other Words, I'm feel like I'm losing the battle.

DaddySpeak started a new job last year.  He was at his last place of work for almost 10 years.  That's an eternity in Silicon Valley.  Because his company is considered one of the best places to work, (in the world,) no one asks, "What's wrong with you?  Why have you been there so long?" which is how ambition is typically determined here in Silicon Valley.  It was an enviable position to be in, in my opinion.  But he'd more or less maxed out there.  If he wanted his job to evolve he needed to leave.  At least for a while.  (It's also not uncommon here to leave so you can get the title you aspire to, and eventually go back to your previous company.  They couldn't promote you title wise because of BLAH, BLAH, BLAH... but now that you have experience at that level we can hire you back in that position or above.  Yeah, I know makes tons of sense. Lame, I agree, but a relatively common practice.)  So, our insurance changed for the first time in 10 years.  Most of my doctors were not on this new insurance.  We always sign up for the PPO plan so that if a doctor or two I've been going to isn't on the plan, I don't have to change up everything all at once.  Which explains why I suddenly had to change up ALL my doctors at once.  The short version is; I spent months trying to get new doctors in line.  And now that I've done that, they changed to OUR OLD PROVIDER. I kid you not.  In the meantime, I just finally got set up at this pain clinic.  I was actually super excited because I felt like these doctors were way more in line with my approach to getting better. Not just managing my Fibro. (The Fibro doctor I've been going to keeps me in drugs.  He isn't open to anything that isn't traditional Western Medicine.  I think I can do better, but was nervous to leave him. I felt like the timing was actually good.  This was the universe telling me it was time to move on.)   However, I've since found that I can't seem to get evaluated to get that treatment at this new place.  Seriously.  It took me 4 months to get all my forms, files, etc...to them.  And this clinic won't talk to you until they have your past history in place.  Finally, all shored up.  Got into my first visit with the main doc.  Looks good, going to be evaluated by several people in house to access my current needs; and BAM.  Red light. They were supposed to call me & never did.  I called them.  They'll get back to me with the doctor's orders.  Nothing.  I made a couple more calls and then I was back in for my follow up with the main doctor again.  (Scheduled at the end of my last appointment, but a different desk/person in the clinic.)  He apologized.  Said he took responsibility for the misconnect & that we'd get moving now.  Still in the same boat.   I can NOT seem to get on the phone with the scheduler.  I've been playing phone tag with her for literally 4 weeks now.  So much for pain management.  In the meantime, as expected during the winter, I've been gradually getting worse. I'm at the place where I've started to get migraines again. That's when I know things are bad.  My sleep is crap.  I can't seem to follow asleep till 3:00/4:00 AM.  I will sleep a good 7 hours once asleep, so that's progress.  The problem is that most of the people around me, are NOT functioning on Hawaiian time in California.  So I'm on swing shift.  I sleep for 3 hours, get up, get the kids off to school, go back to bed.  I don't get much done, but I do get rest.  I've learned through the years, to grab the sleep I can, when I can.  If I don't sleep while they're at school, I'm a mess around 4:00 PM.  You know, right in the thick of carpool.  That's safe, NOT.  So, yeah.

Things are a little better in that, the girls make their own lunches at night & are responsible for themselves in the AM.  That doesn't mean it isn't chaotic, it just means I don't have to actually leave the house with them most days.  (That's a win in my book.)  When I do, I usually throw sweats over my PJs & then back to bed.  Girls are also responsible for dishes, dogs & laundry these days.  We're still working on that, but even when they just do a bit, it helps.

So that's where I'm at in my current medical journey.  No where really.  Fibro is maintaining. Hashi's is maintaining.  (Still gaining weight, slowly, but surely.  That's another post for another day.)  And mostly, we're all holding our breath, hoping there isn't some major catastrophe that puts me back into a completely overwhelming downward spiral from which I need to get more serious help for.

More later.  I hope.

Well Hello There....

I've been thinking about writing again.  I just read my last post. February two years ago & I had an almost identical conversation with my shrink today. And to be honest, it's almost more than I can take.  The reason I have for writing isn't about me or my kids.  But reading that post & realizing the spiral I've been on for YEARS now? I just want to make it all go away. You know.

I'm not sleeping.  Surprise!
Little is still dealing w/the same mean girls. Surprise!
I'm back to being depressed. Surprise.

I just learned that a fellow mom blogger has been diagnosed w/stage IV lung cancer.  It's moved into other parts of her body already.  She will not recover from this, she can manage it.  I'm not good friends with this blogger.  I'm not even FaceBook (FB) friends with her.  I probably read some of her stuff back in the day when I was at my blogging high point.  (i.e.-had a lot of readers  And, apparently, enough time to read blogs.  I really had no idea how busy this mom gig could get, damn!)  It just hit me so hard.  She's a single mom.  Dad is around.  But she can't work now & a mutual  (mom blogger,) friend is organizing fundraisers for her. I'm not naming her because 1) it's not my story and 2) her kids don't know yet.

Her kids.

Her story, right now, is every, single mothers' worst nightmare.

I'm sure it's because of my lack of sleep & depression (& a medical procedure I had this week, that I'm still "recovering" from,) so I'm feeling sensitive to this type of thing in particular.  I just can't right now.  All I know is that I'm hurting for her.  And for her kids.  I feel guilt for bitching when nothing I'm dealing with is terminal.  For having the audacity to complain at all about my health.  No, I don't look sick.  (And FAT or overweight doesn't look sick.  Regardless if it is the way you happen to look sick.  Obviously, this is still how I look sick & it bothers me a lot, still.)  No, I'm NOT going to die from this stuff, (at least not as a direct result, in the near future.)

How dare I complain about the way in which I get to participate in my kids' lives.
How dare I bitch about money issues or lack of energy or sleep or my weight.
All of those things mean I'm still here & I'm still participating.  For better or worse, my kids know I'm here & doing my best to raise them into the best adults I know how to help them be.

I'm sorry.  Do me a favor.  Pray for her.  And for all the other friends I have in my feed who are dealing with cancer.  Pray for their families.  And pray that they can find peace.   Isn't that what we all really need, peace?

Happy New Year!!! Whatever that's about...

Yup, as my post title implies I'm my usual chipper self.  Read on, I know you've been waiting to hear from me w/baited breath.... ;-)

I'm checking in to say, I'm going to try & blog more this year.  Yeah, I do know that isn't saying much.  But I have a "plan" so that means it might actually work out.  I'm trying, is what I want you to know. 

I know, for a lot of people, 2012 was hard.  Because of what happened in 2012, 2013 is going to continue to be hard for a lot of them.  There was a lot of loss this year.  It seemed to really hit home at the end of the year, but I know, I remember, it wasn't just one thing that made 2012 seem hard for so many people. There was plenty of misery to go around.  There always is, if you think about it.  That being said, for me, in many ways, 2012 was a really good year:
 In January, I got back  up on skis for the first time in 5 years.  I started doing yoga on a regular basis. (I believe those things are related, and not in that order.)  I had The Summer of  No Pain.* (That should be said in the rock concert announcer's voice, echo and all.)  And right here, I was about to start to including some of my kids' victories. But, I realize that those belong to them, and I don't want to become someone who is living vicariously through my kids. (At least not too much.)  I have my own battles, and I want my own wins & my own losses.  It would be foolish to think that their losses, (& gains,) don't impact me, bc they obviously do.  So rather than catalog their wins as if they were my own, let's just say that many things, related to my kids lives, that were stressing me out, went away. (Don't worry, there are still plenty for me to worry about still.) And I stopped holding my breath.  It seemed like maybe, just maybe, we had started to find a new normal; one that I could live with.  So just when I started to plan & volunteer, (September, October...) when I started to think, "Maybe we could have people over again, like we used to do."  My Fibro came roaring back w/a vengeance.    So, yeah, I've spend most of this first week of the holidays on a couch or a bed.  I've been on pain pills a lot, just to get out of bed.  Not to go anywhere, just to be able to literally take off PJs, put on sweats & walk down the stairs.  There have been several days, where getting down the stairs was the big event of my day.  I'm hopeful, that the start of a new year, will bring back that normal was starting to enjoy.  That my rheumatologist is correct, and this is "just a flare," which means it will, at some point, no longer be this bad. (BTW, he was "amazed at how well I was doing," when I saw him a month or so, ago.  I went into him, bc I was NOT doing amazing, but compared to the last time he'd seen me, he was in awe.  Sometimes, it's hard to see the forest for the trees, blah, blah, blah...)

I think I lost track of the blogging, bc I wanted to focus on living, not chronicling.  And, truth be told, that's how it should be, right?  Live a life worth chronicling.  BUT, (you knew there was one, there always is w/me,) when I write, I let go of a lot of the bad.  There's a little voice inside of me that says, "Maybe, just maybe, the reason the Fibro came back the way it did, was bc I stopped focusing on me.  I started focusing on everything outside of me; my kids, my husband, my house.... Maybe, focusing on me was the key to getting better."  I think, in the middle of my planning & volunteering, I lost sight of me.  I'm hopeful, that if I can focus on me again, it'll get better more quickly.  So, I'm back.  Yes, dear reader, (all 10 of you, {yes I do know that number is much higher, I can see your stats remember. ;-)}) I'm totally here for your entertainment value.  But, I'm also very much here for me.  Maybe that's the right reason & while, I'll be more consistent this time.


*Let's be real here, I had, literally one day this summer, when I woke up without any pain, anywhere. When I write that, I focus on the fact that there was a point in time, in which, nothing hurt.  I'm sure you focus on the one day. It took me about 10 mins to realize what was different, but I knew immediately something was different.  Other than that one day, I have had pain every single day this year.  It's a drag & it sucks, I agree.  But I'm not alone. There are certainly worse things.  You may have one of those things I consider to be worse, I don't want to offend, so I'm not going to mention them.  My point is, I had tolerable pain during that summer.  "Livable pain." Pain, with which, I could still function like a relatively normal person.  What does that mean?  It means, I could hang out w/my kids all day at Disneyland & not be too exhausted to eat dinner.  It means, I didn't have to take any pain pills to get through my day.  (OTC stuff doesn't count.  I'm talking prescription stuff.  But FTR, I'm pretty sure there wasn't any OTC stuff either.)  I'm at the point w/my Fibro, that I would be thrilled if that could be my new normal.  You can take that how you want, I realized I will continue to want more, regardless of what my body is doing.  I won't ever stop looking for ways to have less/no pain.  But I could be happy w/that level of pain/discomfort. I wouldn't stop working for something more, that's human nature, but I could live with the way things were this summer.

Not Quite a Train Wreck & Happy Halloween!

We have a Rainbow Fairy & a Pirate this year.

Last Saturday, was our school's big fundraiser.  We actually only have one, so saying it's "big" is somewhat redundant.  It's a Fall Festival, which includes a costume parade, carnival games, inflatables, food; including a chili cook-off & cake decorating, a haunted house, and silent auction.  I think I missed a few things, but you get the idea.  It's a BIG. FREAKING. DEAL.  Each class puts together a "basket" for the silent auction.  This task is put on the room parent...and now you know where I'm going with this one.  LittleSpeak's class did something fairly low-key; we decorated a tote w/all the kids hand-prints and had each child bring in a new copy of a favorite book.  I put together a list of the books as a 'book-club' recommended reading list, and we included gift-certificates to Barnes & Nobel and Starbucks.  It wasn't a huge deal and I had lots of help, so it seemed mundane.  I, sort of, blew it on the day of HFN.  I volunteered to pass out pre-paid tickets/bracelets from 1-3.  The parade, which kicks off the event, starts at 4.  I thought I was so smart, getting my volunteer hours before the actual event.  I did not, however, consider the fact that I was going to be at the school from 1 in the afternoon.  So, at 3, DaddySpeak, brought the girls over to the school so I could apply "make-up" and finishing touches on their costumes.  Everything went well.  The girls had a blast, the school raised tons of money.  (We personally "won" 3 of the baskets, which means I have more than done my part for the school this year.  AND quite possibly I've finished some of my Christmas shopping.)
By 8 PM though, we were shot.  We walked home, put the girls to bed and collapsed on the couch.  Big was supposed to go to CCD at 8:30, but I couldn't get her to wake up.  I could've forced the issue w/her, but I could see she was in the middle of a dream.  I decided she needed sleep more than religion that morning.  The fact that my whole body felt like it had been run over might have contributed to that decision.  The short version; I overdid it and spent my Sunday in bed.  More details?  I used up most of my spoons for the week.  Sadly, quite a few things like dentist & doctor visits had been pushed to this week bc we were so busy leading up to the event. 
We made our appointments, but lets just say I wasn't winning any beauty contests this week.  Sweats and baseball hats were the wardrobe rule, and anything I could schedule out, (working in classrooms,) walking in the morning, grocery shopping, cooking diner, etc...was put off.  I did not win any domestic medals this week.  I need to remember to pad my week after events like this.  I tend to get burned by this kind of stuff.  You'd think I'd remember, but it's like my brain loses those part of the memories.  We survived.  The house, laundry and food situation could be better.  But honestly, they've been worse, (not that I'm proud of that).

I started to write this post on Wednesday of this week.  It was supposed to be about what a mess I was this week.  And I was, a mess.  But now that I'm at the next weekend, I'm actually able to be more objective about it.  Yeah, no one is putting the merits of my domestic skills in a magazine.  But I got the stuff done, I had to.  I listened to my body and rested when I could.  And I had enough stuff in the freezer and with leftovers that we, (Daddy,) made a decent dinner for all each night.  So instead of being a train wreak, maybe I'm just a car accident?  (KNOCK ON WOOD!) I guess that's progress, right?

Hello, I'm still here

Hellloooo!!!

I'm still alive! Things are...well, things mostly just are, that's all. I'm very day-to-day. I overdid Satuday & spent Sunday on pain pills in bed. Last two days have not been stellar; mostly waiting for DaddySpeak to get home so I can take a pain pill. Each day's a bit better than the next, until it's not. In the meantime, we had a softball season; BigSpeak's team came in 2nd overall! The outlaws came for a 2 week visit, during which LittleSpeak turned 5! (Christ-on-a-Cracker! How the heck did that happen???) and Big made her First Communion. This week Big turned 8!!! (I don't understand how these children are so big all the sudden!) (Also, you may have noticed, Big got 12" cut off her hair.) Today, is DaddySpeak & I's 10th anniversary. Woot! No, I don't know why he hasn't gone out for cigarettes, even though he doesn't smoke. I'm extremely thankful and lucky that he hasn't.
I know I haven't written in so long; it's just that I have really bad days and when I have moments (and that's all they are,) of ability to do something (laundry! dishes! my life is overflowing with excitement, no?) I tend to try and do stuff for the kids, instead of something for me. I have this sense that I'm failing my kids, but to date, I've only missed 2 of Big's games. I'm struggling not to let my Fibro be the thing that holds us back. I feel it, but so far I think they don't. They know I'm not well. They know mommy gets really grouchy sometimes (pain related). Overall, I don't think they feel much different about their living situation then their other friends.
So Hi! My doctor feels my meds are the right cocktail at the right times and it's just a matter of 3 steps forward, 2 steps back. It's really slow, but it is moving in a forward direction. Each of those things I mentioned deserved a post of it's own. Maybe they'll be forthcoming in the future (I can re-purpose scrapbook pages for those events. ;-) I'm nothing if not resourceful!
I think I'm at the top of this hill (knock on wood,) or at least, close to it. I'm hoping that I'm about to be on the downward slope soon.

Whatever It Takes....

I am trying not to lose my shit here. I feel like I'm bi-polar or something. I guess I feel like the Fibromyalgia (FM) is bi-polar. I'm struggling to "keep up" but I'm not. I'm "borrowing spoons" and paying for it. So I do I what I need to, and then I can't do at all. I have had a few opportunities to write this last week, but held off, because I wanted to write something that wasn't all bitchy and angsty. Now, I'm not sure when that might be, if ever. Yes, I'm catastrophizing, I do it well; Watch & learn from the master. Today, my Irritable Bowel Syndrome (IBS) made another command performance. It was my own fault, but I get so wrapped up in just making it through day-to-day that I have trouble seeing the forest for the trees. Which means, I guess, I just cut them all down? I don't know where that metaphor was going, try and keep up, maybe you can explain it to me later. Let me back up a bit. I had a bad day Monday, both girls were in school and spent that time in bed. Got through the rest of our Monday afternoon and was hit with a migraine right around the time DaddySpeak got home. (Lucky him.) I ended up in bed at 6:00PM. I did manage to kick the migraine about 1o:00 PM, so I got a fair amount of sleep. Tuesday, (yesterday,) I spent the day trying to make up for Monday. LittleSpeak is home that day, so we hit the gym, (her class,) Target, (groceries & b-day gifts,) hair salon, (Little needed a trim,) eye doctor, (I needed more contacts,) and the library. During all of this, my mom called to inform me she might need a ride to the doctor because she may have broken her foot the night before. (Don't get me started on the fact that there are currently 3 other drivers living with her right now, and that she waited till they all were somewhere else to call me. I don't have an issue with helping her, I find it curious that I was her first choice, when, clearly she had other options. Yes, another post, another time.) So in-between all this running around, I was working the phone with my mom. Not a big deal, but an additional stressor. At 4:30 PM, Little had softball practice (because so many games have been canceled due to rain,) and BigSpeak needed to be at warm up for her game at 5:00. No, they are not at the same field. I worked out a carpool for Big, (original plan had involved G'ma,) and during Little's practice texted Daddy to pick up Subway for dinner, chairs to watch the game, (which were not in the van,) and the snack for Big's game (we were the snack parents that night, of course.) Keeping up? I drove from Little's practice to Big's game. You may remember, that I'm the unofficial photog for my kid's teams. (The parents on Little's team haven't quite gotten the memo yet.) Big's team is so used to me, they see me with a camera nearby and they check their teeth and smile. I'm not joking. I have a few reasons why I prefer being a soccer mom to a softball one, but the top of the list is photo ops. I can't get in close to the action in softball, like I can in soccer. Thus I spent half of every inning on my stomach at the foul line, just past the backstop fence. As you might imagine, this did much for my back pain. An hour after the game, I could barely move. My neck, shoulders, back, hips were all in agony. I slept like crap. If I stay perfectly still I'm fine. Whenever I moved, it would wake me up. This morning, was not my best. I got both girls off to school, but I was hurting so badly. I decided I wanted one of those Starbuck Mochas. My version of comfort food. I've been really, really good on my low-carb diet for a little over a week now. Honestly, I didn't feel like it was helping at all, so I splurged.

I won't ever do that again.

Within 30 minutes, I was so very sick. I don't really consider a warm mocha my comfort food anymore. In addition to the back, neck, shoulder, etc...pain, I added a very bad bout of IBS to the mix. I took some meds for the IBS, I've had limited success with them in the past. I've been very, very good about my fluids all day. I did have some cheese this afternoon and a few hours later, some nuts (almonds and cashews); all high protein stuff. I got crampy, but my stomach held. That's where I am now. I kinda don't ever want to eat again, but I'm sure that will pass.

I'm going away for a girls weekend on Friday. I'm torn about going. I feel like I have so many things I need to be doing, and this two steps forward, three steps back dance I'm doing, isn't helping. I scheduled this weekend because we had nothing going on, and I wouldn't be missing anything. Now, because all the rain we've had, all kinds of events have been rescheduled to this weekend. The girls have two birthday parties and games. Daddy is going to either have an appreciation for what I do, or be gone when I get back.

I really, really hate this. I'm getting depressed. I'm just so tired and hurting. Big had to write a sentence for homework using the word spine, I suggested something to do with mine not being great and she replied, "I don't want the whole world to know!" Um, okay. I reminded her that my health issues are not exactly a huge secret. She said, she knew that, and she didn't mind if her friends knew, but not the whole school. So, yeah, my 7yo is embarrassed of me. I also got on a scale for the first time in a while and my weight is up. I'm at my heaviest non-pregnant weight ever. I'm not surprised by it, I can tell by the way my clothes fit, but confirming it, isn't helping my mood. I just wish there was some way to fix this, to make it all stop. A magic pill or diet or exercise. If there was a way to make it go away, I would do it. Whatever it takes...

Acceptance

The last few weeks have been an emotional roller coaster. There's an understatement. I'm currently in what one would call a "Fibro Flare." I went through a very long period of denial, months in fact, and the last couple weeks have been a hard lesson in acceptance. I was going to write something about how hard it is to have a chronic illness. Then I started thinking about all the chronic stuff out there; diabetes, arthritis, lupus...and realized that I need to get over that part. It sucks, there's no doubt about that. But everyone has crap they have to deal with on a daily basis, (and don't get me started on the stuff in Japan, because that will put me into depression,) so I need to quit my bitching about that. No, the hard part this last couple weeks is knowing what is coming and feeling a complete loss of control. Before, I didn't know what was in store for me. My primary Fibro symptoms have included; migraines, non-restorative sleep, insomnia, Irritable Bowel Syndrome (IBS), Chronic Fatigue, depression, TMJ, wide-spread muscular pain, etc... It's a long list, but those are the symptoms that were bad enough to require medical care. My migraines started back up several months ago. At first, they were clustering around "my time of the month," but started becoming more and more frequent and debilitating. I finally got into a doctor for them and also admitted my sleep patterns had not been that stellar as of late. This doctor was actually somewhat excited to treat me. He had "some great meds for migraines that weren't around when I'd been treated for them previously." He's also the one who brought up my Fibro and started asking questions about my sleep. He prescribed me a low dose anti-depressant to see if it would help with my sleep. Since then I've had only 1 full blown migraine, which I was able to mitigate w/the migraine meds he gave me. Lasted less than four hours, as opposed to the multiple day ones I was having before. I also realized all the peri-menopause symptoms I'd been having (bad hot flashes & night sweats,) seemed to have stopped around that time. Bonus! Awesome!

Since that time though, my body has been trying to change it's clock. Trust me on this, when your body does this, there isn't much you can do. My body clock would like to be from sometime after noonish to about two or three AM. I am trying to keep it on the 10 PM to 7 AM for sleep vibe, (since it's almost midnight now, you can see how well that's working,) so I can deal with my kids when they're awake, but not so much. I know all the tricks related to sleep issues; only sleep in bed, no TV, no books; go to bed and get up at the same time every night, keep paper by your bed to write things down (keep your mind from spinning,) there's more, but you get the idea. It's not working. My body is running at it's peak about 10 PM to 1 or 2 AM. I can't seem to shut down before that. New flash: When you don't get enough sleep you're exhausted. Your PSA for the day, you're welcome. I'm great at pointing out the obvious. The exhaustion is typically accompanied by pain, and round the cycle goes; the pain makes it hard to sleep, you don't sleep so you have pain. Whee! The final straw, (in the past,) has been my digestive system. When my GI Tract gets involved it goes big. By big I mean it's landed me in the hospital a couple times. I don't think it'll ever do that again, (I did a lot of the wrong things in the past & know better now,) but never say never, right?

The widespread pain started in earnest about 2 weeks ago. (I've had major pain before that time, it just seemed to be centered to my sciatic issues.) I have 2 types of pain, nerve, from my disc problems and muscular, from my Fibro. I may have been dealing with the pain issues for much longer, but it started traveling to old favorite areas (mid-back, neck, shoulders, ankles...) in the last month. Areas that have nothing to do w/my lower back or leg. I suspect the two things exacerbate each other for fun. The exhaustion kicked in at that time as well. For the last two weeks or so, I get up, get the kids where they need to go and get back in bed till I have to go get them. When they're home, I lay on the couch and have them move the kids chairs & tables near so I can help with homework, read to them, etc... Yeah, no nominations for mother of the year over here. I feel like I've got the flu or mono, that's the kind of tired I'm dealing with here. I've been working on getting back onto a very low-carb diet, because I felt in the past that it helped with my symptoms, but it's been slow going. When I'm in pain I want chocolate. (Understandable, chocolate releases endorphins, your body's natural pain killer.) What I really want is my Starbucks Mocha. It's my version of comfort food. The warmth of that chocolate going down my throat immediately relaxes me. That craving, is my Achilles heel for the low-carb diet. It's the hurdle I'm having trouble getting over. This morning, after 5 or 6 days without one. Five to six days spent in bed because of pain, I decided I was going to have one. I figured if I limited my carbs everywhere else all day that could be low-carb enough. I was taking Little to gymnastics, where I sit for an hour on a cold bench in an unheated gym. It doesn't do wonders for my pain level. I wanted one to get through that hour, and the next couple after that which would more than likely be pain filled. I indulged. My pain had been slightly better and the feeling of that warm mocha seemed to help melt the last of it away. Surprisingly, I ended up running quite a few errands with Little after gymnastics because I felt so much better. Then my stomach joined in. My IBS seems to have taken exception at that mocha. It took the Fibro pain and turned it into Fibro IBS. All the bloated, uncomfortable, out-of-control feelings that come with IBS have shown up. There are other, more graphic details, I'll spare you, that accompany a bout of IBS. Let's just say I have no doubt it's not just something I ate. It's me. It's the way my body responds to this; it's the Fibro.

I haven't wanted to admit it's back. I know I've said that in the recent past, but I'm still fighting it. I still don't want to believe it. I want to be back how I was when Little was an infant. That short period of time when both girls where born, my back had not been injured yet, and my Fibro was gone. I want that back. I want my girls to know that mom.

I have owned up to the fact this is for real. My old rheumatoligist considers me a new patient because of the amount of time since I've seen her. "She's no longer taking new patients." Can't make this shit up people. I went to see my GP last week. Seeing a doctor about it, makes it real. She's good, she listens and seems to care. I told her my details, she's concerned about depression. (She "doesn't know much about Fibro.") My response? "Chicken or the egg?" One follows the other, you don't sleep, you will eventually experience a true physical depression. I know of what I speak. She referred me to another rheumy & wants to me see a shrink as well. I have an appointment in April w/the rheumy; I'd seen him briefly 10 yrs ago, but had to change due to insurance. That got me the April appointment, as opposed to May. Glad I'm not an emergency. I still need to find a shrink, but I'm procrastinating. I've had good & bad ones in the past. The bad outnumber the good 2-1, I'm just not into it. I know I need to see one, but I just hate the process.

Know what I hate more though? I hate that my body feels like it's attacking itself. I'm ready to be done with that.

Full Blown

I've been trying to deny to myself that my Firbromyagia symptoms have been coming back. No one wants to admit things are really bad, when they really are. You go into a mode a period of time, trying to convince yourself that you "pulled a muscle," must be coming down with something," etc...I've totally been doing this with myself. I did have the flu weekend before last. And I do have some residual pain/cramping that is associated with that. I realized that this pain I'm getting down my right leg to my knee, is the same shooting pain I usually get in my neck/shoulders. This morning when I woke up, I had a full blown Fibro episode engaged. I can no longer convince myself that this is just a phase or that will pass. The pain is widespread and memorable. It amazes me how easily you forget how bad the pain can be; until you in it.
It sucks.

A Spoonie

I've suffered from Fribromyalgia, in a documented sense, since I was 18 years old. I'm 43, so you do the math. My point is, it's a long damn time. Until 2001, I suffered not knowing what was wrong with me. If you're a person who has suffered from a chronic illness, you have an idea of what that is like. How it feels to run test after test, and then do them all again, just to get no answers. To have the doctors, your family, you friends, all look at you like you're the crazy cat lady because no one can figure out what's wrong with you. Inevitably, a medical professional will imply that maybe it's all in your head. This is often the same professional who originally agreed that there was something, indeed wrong with you, you have real symptoms after all. But upon being thwarted by his tests, rather than admit defeat, is looking for fault in you. It couldn't possibly be that maybe we just don't have the tests to determine the problem you have as of yet, could it? Once the medical profession starts to give up on you, you find that many family and friends will start dropping off. Those that do stick around will tell you things like, "Just get out of bed and decide you feel good. It will happen." and the ever popular, "Suck it up." As if you could decide to feel better. Who the hell would choose to feel like this? You get an idea of part of what I've dealt with emotionally during this process.
Yesterday, I got a Direct Message (DM) from one of my Twitter followers, "I didn't know you were a spoonie!" Um, neither did I, what the heck is a spoonie? She was shocked I wasn't aware of this website; But You Don't Look Sick? Ooooh! Now it all makes sense. I had heard of the spoons via Queen of Spain, (QofS,) but assumed they had something to do with her family, so I never really took much interest. Beside, I was trying to hold it together; between my back pain, my kids, & trying to keep my fibro in line, my sleep issues were creeping in about that time, I didn't really have the time/energy to go peruse blogs just for fun. Coincidentally, QofS posted this, a few hours after I got that tweet.
No, I don't have lupus, but like lupus many of my symptoms are hidden. I don't look sick, but I absolutely am. With all the back problems I've had in the last four years, my fibro has taken a back seat, thankfully. I seem to have been controlling it with diet to a degree, but it's been trying to sneak back up on me. When you feel better, you stop looking for resources. I suppose that's why I missed this site during my former forays looking for information/support/community. I'm excited to see it exists. I hope beyond hope that fate, God, Flying Spaghetti Monster or whatever you want to call it, isn't giving me a heads up that things are about to get really bad. I'm afraid to hope that it isn't just letting me know there's a community there if I ever need it. I really hope I don't though.

Yes, I've Drunk the Koolaid

I've drunk the Weight Watchers (WW) koolaid & read the bible. I can even give you all their answers on this new program. The answers are not all the much different from the old answers, just the points are different. I could teach the program if I was at my goal weight, but I'm not.

So in a conversation on Twitter with Bored Mommy, (BM) today I was was imparting my WW wisdom 140 characters at a time. Dr. Browne even told me I was giving good advice. Too bad, I have such trouble in the practice sense of practicing my wisdom. Typing it all down 140 characters at a time was probably giving me carpal tunnel or something, so I decided to actually get on here & write it all down using a keyboard.

The topic came up as BM complaining that she only lost TWO pounds in her second week on the program. She was sort of disappointed with this number, stating, "I know it's not realistic, but I'm hoping for more like 'Biggest Loser' numbers." In her post, on her blog, she indicated that the second week of a diet,

But it’s the week where I always realize the size of the mountain that I need to climb to get to the end, because no matter how great I do during week one, week two will always be a smaller number, in terms of a weight loss.

She also bought up that she "cheated" (her word, not mine) by having a scone & french fries during the week. I take issue with the word cheating, but I'll take that on in a minute. Lastly,
she wrote:

This is where the whole mental thing really comes in for me. I tell myself that I can’t do it, because I have SO MUCH WEIGHT to lose. The negative talk in my head is non-stop and really kind of pathetic. I kick myself when I’m down at every turn. I wish I only had to lose 15-20lbs so I wouldn’t feel so damned overwhelmed every time I think about it. I’m really trying to think positive, but I’m kind of a weight loss failure, if you haven’t noticed. I totally suck at it, because mentally, I just tell myself it can’t happen.

Wow, where do I start?
My original comment to her was that I couldn't believe she does a weigh in on Monday?!? As a professional dieter, (No, I don't get paid for it, but I don't get paid to be a mom either, and no one questions that title.) I know that Monday is probably the worst day to have your weekly weigh in. Why? (And you're asking why, you are probably a skinny bitch who has never dieted & I sort of hate you right now, but whatever, pass the chocolate.) It is most likely that if you're going to really go off program it will happen on a weekend. You need some recovery time. Monday weigh in, gives you no recovery time. You think I have the wrong attitude? Maybe, but I also believe in not setting myself up to fail. If I had to weigh in on Mondays I would be more likely not to go. If I don't go, then I stop doing the program. It's a slippery slope folks. I weigh in on a Wednesday. I go to meetings to weigh in too. BM is using the online program, which is good, no doubt, but there's reason why people who go to meetings are more likely to stick with it and lose faster.
There are a couple things about meetings that are really important, accountability and positive reinforcement. Going to a meeting every week give me a solid stop/start time for each week. If I need to mentally clear myself from what I feel was a bad week, I can do that at my meeting. I know what the damage was, often no where near what I think, and I can move forward. The other important thing about meetings is positive reinforcement. All of the following are things you should be hearing at every meeting:

1. It's NOT a diet, it's a lifestyle.
2. You CAN eat anything you want. You just have to decide where you want your points to go.
   
3. Sometimes, it's not about losing weight. Sometimes it's about maintaining, or not gaining more than a certain amount. (Think vacation.)

The biggest thing I think you get from going to the meetings is seeing that you are NOT alone. It CAN be done and that it just takes time. The meetings I go to are actually fun. Our leader should being doing stand up, which is awesome for us. The more fun it is, the more likely you are to go. I've noticed too, that if I'm having an emotionally bad day, and my weigh in isn't what I hoped, sometimes just hearing of others success can boost me. What can I say, I'm lemming. Another benefit to going to meetings is that we share information. We bring in food (wrappers) that we find are low in points and still yummy, and pass them around. We write the number of points on them & tell each other what stores carry those products. The leaders aren't supposed to encourage this, WW is a business and they are employees after all. But it's been a huge benefit for me to know of things my family won't turn their nose up at because they see WW on the package and assume it's "diet food." (We also have a Trader Joe's sharing our parking lot, so many of us do our grocery shopping right after the meeting.) We also share about things that are crap. Sometimes, something good suddenly changes it's portion size or whatnot, and someone will notice and make sure the rest of us are aware. Power in number people.

As to address the idea of only losing two pounds in the second week, wow, talk about an uphill battle. If you're feeling that way on week two, I find it hard to believe you're going to stick to it. We need something to make you feel good about when it comes to this topic. Listen, any weight loss program that's works won't have you losing more than half a pound to a pound a week. Yes, the first week is usually a bigger number. And if you have a very large amount to lose, then it's not unrealistic to lose more every week, a la-Biggest Loser. The truth is, you didn't gain this weight over night, you're not going to lose it over night. If you do lose it overnight, it's very likely it'll pop right back on. It's not healthy for your body to yo-yo, and quick gains or losses fall into the yo-yo category. Instead of focusing on the big number at the end, figure out your 5% number and focus on that. Once you reach that goal, focus on the next 5%. If you do it in little steps like that, it's way less intimating. It also can help with things like going on vacation. You gain a few pounds, but instead of beating yourself up, you focus on getting back to that 5% goal. Totally doable. Gives you things to celebrate too.

"Cheating"
If you truly want to lose weight and keep it off, you need to change your thinking. That's your biggest hurdle; Not losing weight, not staying away from Starbucks. Those things will benefit your weight loss, but you'll gain it back, if you don't change the way you think about yourself and your body. (I told you I've drunk the koolaid.) There is no such thing as "cheating" on WW. You can, and SHOULD eat what you want. If you don't, you'll go off of it. Once you've lost the weight, you aren't "going off" the program, are you? If you do, you'll just gain it back, you know. If you deprive yourself of the things you like, you will stop doing the program. I can tell you that without a doubt. WW gives you an extra amount of points every week so you can have those things. You have to choose how you want to do that. It may mean that you can only have your white mocha two times a week, or maybe a tall instead of a vente. (Guess you can tell where my extra points go.) It's your choice. The bottom line is that what you were doing wasn't working. What you were doing caused you to gain the weight in the first place. Or it wasn't helping you lose it, at least. When you've lost all the weight, you can't go back to what you were doing before, or you'll end up back where you started. Give yourself a chance to succeed. Allow yourself to have the things you want, it's not cheating. It's living. Just choose to be healthier too.
I have a whole deal on exercise too. But I'm going to let this sink in right now. Key take aways from this:

• Be Nice To Yourself.
• Allow Yourself The Things You Love.
• Set Yourself Up to Succeed.

Weight -The Back Story (AKA-How To Make A Short Story Long)

I know I've mentioned my weight before. Ever since this back problem started, and the shots and the steroids, blah, blah, blah... I always thought that the weight I gained would come off easily once I was able to get moving again on a regular basis. Maybe, once I get down to a certain weight that will be the case? I don't know. I have a theory right now about how your body responds to weight loss/gain.

If you're in a mode where your body is gaining weight you're more likely to gain it. If you're in a mode where your body is losing, you'll be more likely to lose.

Huh? I know, when I typed that I was like, "Well, that sounded brilliant. Jeez." What I mean is that when your body is already in the process of gaining weight or holding onto it, you're more likely to gain weight. Your body is responding to your need to make sure you have enough stockpiles of energy. Even if you're already overweight, you're body is in the mode of holding onto the supplies you put in, so it's going to keep doing that till you teach it differently. Same with losing weight. If your body is in the mode of burning it's supplies, it will continue to do so, unless you teach it differently. As I'm writing this I'm realizing it sounds very; "a body in motion will tend to stay in motion..." And I guess that's pretty close to what I'm saying. I came to this little nugget of wisdom as a result of how my body responded to the steroids I was put on to try and heal my back.
The first time my doctor put me on steroids I actually lost weight. I know that's the opposite what of what does happen to most people. I was in a lot of pain, most of the time. I wasn't moving much and I wasn't eating much. Maybe the steroids helped so that I was moving more and I just didn't realize it, but I don't think so. By the time I was done with that phase of my "healing" I'd lost 20 lbs. I looked awesome! But I felt like shit! So I never went anywhere looking that awesome. I don't think my cats fully appreciated how great I looked either, totally wasted on them. The second time I was put on oral steroids was a few weeks after my back surgery. I try to tell myself that the surgery or something about it, slowed down my metabolism, and maybe that's true. What I know for sure is that I put weight on at that point. And I put it on fast. I gained 20 lbs in 2 weeks! It took months for that 20 lbs to come off before! Two effing weeks! So unfair. I wasn't eating a bunch more, I definitely wasn't moving more, but that weight popped on like I was sucking fat 24/7. There's a visual for you. You're welcome. I told myself not to freak out, "It will come right off once I start walking everyday again." Yeah, not so much. In the process of the next year, I put on an additional 20 lbs. Yes, I was eating again, but I was moving again too. In my opinion, it should have at least been a wash. My body didn't get that memo, so now I'm 40 lbs up. In September of last year I went back to Weight Watchers to "stop the bleeding."
I'm a "lifetime member" at Weight Watchers, (WW). I joined it around the end of college. I was in great shape, working out everyday, but couldn't seem to get rid these last 10 lbs. My folks were on it, and having good success, so I joined too. It took many, many months, but I did lose that weight. I also kept it off for over 6 weeks. That's what made me a lifetime member. I've gone back at various points to lose weight that I'd gained back, but I pretty much kept it under control until pregnancy.
Pregnancy was not nice to my body, is it to anyone's? After I had Big, I had some weight to lose. (I gained 30 lbs. with her.) I breastfed and found out those "Milk Nazis" are lying liars! It did NOT take the weight off. Diet & exercise helped get it off. There were 10 lbs I gained my very first month of pregnancy that never did come off. At the time, my doctor told me she wasn't even counting them as part of my weight gain, "because I was obviously doing things to keep the weight off before I was pregnant. My body was making sure my weight was where it needed to be to take care of my baby now that I was pregnant." I informed her I was counting it when it was time to take the weight off. I was wrong. Oh, I counted it, I just never got it off. I was too busy with my baby. And during that time, I didn't care that much. I wanted to lose it, but I didn't have the bandwidth to give to the process. I was having too much fun being a mom. When I got pregnant with Little, I actually lost weight. No, I wasn't sick, my body just didn't gain. The total weight I gained that pregnancy; 10 lbs. I had a lot of weird symptoms that pregnancy; I was actually told to drink at least a cup of coffee every day, to try and help get my blood pressure up. It turned out I had low amniotic fluid. I didn't test low till the very end, but Little's umbilical cord was less then a foot long (they're usually 3-4 feet, I'm told,) which is typical with low amniotic fluid. I looked awesome during that pregnancy. When I left the hospital I did not look like a person who had just birthed a baby. So even though pregnancy did it's number on me, after two pregnancies I was actually thinner. That lasted until the back injury. And now we've come full circle.
So, I went back to WW in September. By early November I had lost 10 lbs. Woot for me! And then the holidays hit. I tried to stay focused, I really did. We had the "attack of the super lice" during Thanksgiving break and it's been uphill since then. I know I haven't blogged about the lice issue, it's because I've been dealing with the lice issue. I intend to write about it, at length. I even started writing the post, but then I had to go comb a kid's hair or something. When I get over the trauma of completely cleaning out an entire house THREE TIMES! I'm still suffering PTSD from the whole thing, so I can't talk about it much. The current standing is that we treat the girls all month as if they still have lice; special shampoos, conditioners, and detanglers, along with a brush through with the lice comb every night. No, I'm not exaggerating. The brush through is no small task, have you seen Big's hair? It's LONG. We seem to be bug free for several weeks, but we thought that before and will continue our protocol at least through January. So yeah, I started stress eating, and it was the holidays, so there was a lot of food to stress eat. Also, I had a birthday in there, and you know, cake. At some point I just said screw it, I'm not even trying anymore. I ate what I wanted. I binged. I gave up completely. When I went back the first week of the year, I'd gained it all back. So I'm starting from scratch more or less now.
Bored Mommy posted about her first week on WW. I read it, and commented. I'm a freaking pro at this deal, I just have to practice what I preach. I decided I'm inspired to blog this part of my life too. So I will be adding that little tidbit to my other postings as well. Now that you have the backstory....

Suffering from Bouncy Brain

Today I'm in a really weird mood. I've been wanting to write, but have been really busy & not able to stop to get the words typed. (Course, I could cut into my Twitter time & maybe make a post happen, but that's an awful lot of effort on my part.) Today, I'm sick. We were suppose to be in Tahoe this weekend w/my bro's family & my 'rents, but yesterday Big & I came down w/a fever. Hers seems better today. Mine is decidedly worse. I woke up multiple times last night covered in sweat. My guess is that I was running a fever and it broke (several times). That or I just got grossed out by myself, even in my sleep. (It could happen.) This morning my temp is still high. You can tell by touch. Also, by the fact that any time I move, I get aches in the muscles I use (yes, my fingers are achy in the typing of this. That's dedication folks!) and I get the chills within a few minutes. The net result of this is I can lie in bed & type w/out feeling too bad. As long as I take a break every few minutes. My brain, however, is going a million miles a minute. Having been forced into rest, my brain has caught up and passed my physical self. It's longing for things to do, to be distracted by. Facebook and Twitter aren't cutting it. Perhaps, because everyone else in the world is OUTSIDE in the beautiful sunshine we are having for the first time this year. Perhaps.

I've got weird things running through my brain today. Maybe I dreamed about them? Not sure. I write a few sentences & then go read Twitter or Facebook. My reason for this blog post has changed 12 times already. At this point, I'm pretty sure what I should write is that I'm feeling a bit ADD & manic today. Just my brain, my physical self is shaky, dizzy, weak and feverish, if I move around too much. But mentally: manic, very, very manic. It's actually very much how my life has felt in general lately only more on the down side. I'm tired all the time. Right now, I feel like I have a ton of energy, I just can't use it. I suspect I've lost most of you by now. I'm pretty sure my writing is a bouncy as my brain is feeling right now. If I haven't lost you, you should really consider seeing a shrink or something. I hear they have drugs for that.
I think what's going to happen is that I'm going to write several posts that are bouncing around in my head and I'll actually post them over the next couple weeks. There's your warning. None of the things I'm thinking seem to be connected in any way, shape or form. Putting them out today or over a period of weeks probably won't make them make sense either, but maybe. Perhaps, the take away from all of this is, I need to go see my doctor. Or I need to get well enough to go hang outside & enjoy some vitamin D.

Over Done, Merry Effing X-mas

I'm over done.
I'm sort of in the middle of a tantrum of my own, I guess, but I've been bottling up all these feelings for some time now (why I haven't written) and now they've accumulated till there's no more room for them.
I'm feeling overwhelmed as we're dealing with the third round of lice in the girls. I literally spent my entire day yesterday and today, treating the girls & brushing them out. I haven't even done the whole wipe down, clean out the whole house thing because I just can't wrap my head around it. But it's hanging over my head that I need to do it, or I will be dealing with round #4 of this, at which point I'm considering fire bombing the damn house.

Yesterday, we did Christmas gifts w/my family. The girls were thrilled, as they received what they were hoping Santa would bring, (American Girl dolls,) but from my parents. Honestly, that's really all I care about, that they're happy. But, I'd be lying if I didn't admit I was left feeling like a major afterthought. For some reason, my mom decided that I would like what my SIL wanted for Christmas. So, pretty much, she gave me duplicates to what she bought my SIL. My SIL & I don't buy for each other, so haven't seen her list. I'm assuming that she wanted the things we were given. Maybe she's thinking the same thing as me. What I do know, is that of the presents I received, 3 were things I already had, and 1 was something I won't use. I don't want to sound ungrateful, and I know that's how this is sounding, it's just another straw added to my stress level, and the camel's back broke ages ago. It just made me feel like crap. Several years ago my family created electronic lists, so there was no question as to what people wanted for birthdays & Christmas. I updated my list, but no one seems to have actually looked at it. OK, that's not true, I did get a bathrobe (from my parents,) I wanted for my birthday. But otherwise, no. My husband got me a outdoor light for my birthday, no, I did NOT ask for it. I mentioned this summer when we had the house painted, that now we needed a new light & mailbox for the porch. I did not put it on any personal lists. I did not consider it something that I would've give to my husband as a gift, as it's something for the house, not the person. Now, my folks have joined the foray with their effort at Christmas, and it just made me feel like crap.
Yes, I'm totally having a pity party. Yes, I'm being a baby & throwing a tantrum of sorts. I get it, I need to put on my big girl panties and move on. It's just been a nonstop barrage of Fibro symptoms, and fire drills (read: lice infestation) and I'm feeling very over worked, overwhelmed and under appreciated. I know much of this is an emotional reaction to the lack of sleep & pain I'm dealing with, but it doesn't make me want to cry any less just because I know the rational side of what's wrong with me.
Tonight, when DaddySpeak got home early from work, I suggested we get Subway & go see the lights in the park in Los Gatos. Yes, it will be a long line, but we're free tonight & the girls would like it. He said no. He said it was because sitting in the car like that is bad for my back, but I know the real truth is that he hates being in the car like that. He can say what he wants, but that's the truth and he knows it. I was in the middle of my FOUR HOUR hair routine w/the girls at the time, so him coming in and telling me I'm doing it wrong didn't improve my mood so much either. I told him to knock himself out & finish, so he did. When done, he wanted to know what was up for dinner. I told him I had put forth my suggestion & been shot down, so he could do it. I did suggest some food I had in the kitchen, but the girls wanted pizza and worked him over. I'm supposed to be getting on my low carb diet which, is sort of a joke, (I've been stress eating so much chocolate, I'm pretty sure I've gained all the weight back I just lost,) but I opted out. So they went out to dinner. I'm sure they were probably relieved to get away from me. I'm such a freaking bitch right now, I wouldn't want to be around me either.
So I'm going to go frolic with all the last min shoppers & see if I can't get my ass run over in a mall parking lot or something, because, clearly I hate myself. (Why else would one go shopping tonight?) I have a couple last minute things I need to get for the girls and him. Not deal breakers, but things I haven't been able to get because of sick kids, sick me, and now school's out.

Fibro

I try to tell myself I'm just overdoing it. I'm run down from being sick. I'm getting sick. Aunt Flo's about to visit. I can think of TONS of reasons why I feel so run down, tired, achy, headachey, etc... My reality is that my Fibro seems to be coming out of remission. I don't want to admit that. The idea of it, is depressing on it's own. There have been lots of hints, some little (trouble sleeping,) some big, (migraines). When you look at all of it, it adds up to Fibro. I went to the doctor this week for my migraines. He was very excited because he has this "wonder drug" for me. "I'm going to kick myself for not coming for help sooner." I hope he's right. But when he found out I have Fibro, and that this might be linked he had lots of questions. Good questions. It's almost weird, the turn around from, even just a few years ago, when doctors looked at you suspiciously if you told them you had Fibro. He knew a lot about symptoms, and what to ask. He believed the migraines are linked to my hormones and my Fibro, but thinks this "wonder drug" will really help. Incidentally, while I was there, I got a migraine. So I got to try this "wonder drug" right away. It did seem to help, not exactly the way he said it would, but I'm headache free 24 hours later, so we'll see.

He was also very concerned about my sleep issues. Oh did I neglet to mention those? Yeah, my body is suddenly on the swing shift. Seriously, it's like someone has fliped a switch and I can't turn off after around 9-10 at night. Suddenly, it's 3 AM and I'm still NOT TIRED! I almost feel bipolar about it, I'm so awake. But, you know, kids have to get up at 7, so I'm shot when I have to get up with them. The sleep I am getting has been tense. I wake up w/a sore face/jaw/head from clenching my jaw all night. I'm also getting next to no REM, which is the typical sleep pattern for people with Fibro. He gave me a low-dose anti-depressant to help with my sleep. It's something I've been on before, so hopefully it will be helpful this time as well.

I'm depressed. I'm tired. I have a lot of medical symptoms going on. But I don't want to whine, so that's why I haven't written about it. Alright, to be honest, if I wrote about it, it made it real. I don't want it back. I want the nice, normal, active life I've started to have these last few months. But I do realize I need to ask for help and try to stop this before it gets out of hand. Now that I have kids, I don't have luxury of letting it get the best of me. I just don't.

Not Depressed. Not All That Happy Either.

Our network was down for a week. I know a week! I'm not sure how I survived it either. That, coupled with some other issues I'm having, are the reason I haven't posted in longer than usual. During that week, I had lots of things to post about, of course. Now I can't remember what they were.

I'm having a hard time lately. I'm exhausted. Fatigued. Wiped. All of the above. I'm having migraines, bad ones, every other day. By 3 PM I'm shot. It's all I can do to keep the kids alive till DaddySpeak gets home. Yes, my back is finally better and now this. I wonder to myself if I'm being a hypochondriac, even to myself. Could I be imagining these symptoms? Do I need to have some kind of medical drama, about me, all the time? But in the back of my mind I know exactly what is going on with me. I haven't wanted to write it. Writing it, makes is seem real. It means I have to start to fight it, and I'm so very tired. I don't want to fight, I want to curl up and go to sleep.
I'm pretty sure it's the Fibro showing it's ugly head. I'm having back/neck pain, (not my disc in my lower back. This is up in my shoulder area). I'm not sleeping well, (no REM sleep). I'm having focus issues, (Fibro Fog). I'm tired all the time, (CFS). The laundry list of symptoms has started. Why? Why now? I think it's because I'm not on the low-carb diet anymore. Seriously. No, I wasn't being great about it, but I still wasn't really eating breads, pasta or rice. I was eating way less carbs than I think I realized. I started Weight Watchers about 6 weeks ago. I've lost 10 lbs., I've done WW before and had good success. The problem is that I'm eating rice & pasta again. The last 4 weeks have seen my symptoms getting worse. I got my doctor to run blood tests. I was sure it was hormones, it's not. It's been years since I've experienced symptoms. Like a pouting two-year-old, I'm stomping my feet and having a tantrum. I don't want this. I just want to have time and energy to enjoy my family. My girls don't even know who I am, what I can do. They've just started to get a glimpse of me. I feel like I've already missed so much. Dramatic much? Yeah, I know. Hopefully, getting back on the low-carb diet will stop it again. I have to be honest, I'm not really looking forward to it. I like my daily mocha. I miss pasta & chocolate. Not as much as I like feeling well, but I still feel a sense of loss over it. Hopefully, that's what this is about, but it's still frustrating. It's scary. What if the diet doesn't help?
My mom asked me today if I'm depressed. I've been wondering if I am, but I don't think so. Depression would take energy, that I just don't have, at all.

Pain of a Different Sort

I think this whole journey is starting to get to me. Today was hard. Really hard. It's the first day of summer vacation & I was either super bitchy or on the verge of tears all day. This is all from emotional & mental issues. The physical pain is there, it always is, but the emotional pain was the worst it's been so far.

The girls sat on the couch this afternoon going over all the things they want to do with me, but haven't been able to because of my back problem. None of it was anything radical, it was things like riding bikes & running together. I would've cried if DaddySpeak hadn't rescued me from the conversation. I explained to the girls that I feel the same way, that's why I'm going through all of this; doctors appointments, physical therapy, epidural shots... but they don't understand any of that. They only understand that mommy says, "no" a lot about things. Things that all their friends' mom's can do. Things their mommy ought to be able to do.

I believe I'm in the middle of a trifecta of chemical imbalances (in my brain,) at the same time. You may think I'm off the deep end with this one, but once I tell you why, I may seem more sane than before. A few weeks ago, I realized that the neurontin, was fogging up my brain to a fault. I couldn't remember anything specific about conversations. Even conversations that had occurred less than a few minutes before hand. I was starting to get concerned about what I might be doing, while say, driving and not be remembering it. Realizing how bad it was getting I decided to pull myself off. The doctor and I had discussed how to do this when I first started the drug, so I followed his instructions from before. Guess what else it was doing? The neurontin was helping with my pain. I know, because of how much of it was back once I was completely off the drug. It was that, or I just couldn't remember how much I'd been hurting.

In the meantime, my other doctor wanted to schedule another epidural shot. After the last one, I did have some reservations. We had a discussion about where my pain had been & where it was now. We determined that I'd had about a 20% reduction in pain, which seemed about right. "Would I be willing to go through that for another 20%?" Well duh! If I thought I really was going to get another 20%, but that much is unlikely. It did seem to be helping some, and I'm at a loss for what else to do. The skin problems were resolving themselves, (with some help from the spa in Vegas,) so I signed up for one more round.

Also you may remember, I mentioned I had a visitor at this same time? Aunt Flo is not friend of mine, and has not improved my situation. The night before my epidural shot (Tues) I had a discussion with a friend about our shared perimenopausal symptoms. Long story short, her doctor had recommended birth control pills to help with the symptoms. I had my annual OB/GYN appointment (because an epidural shot isn't enough for me in one week) scheduled for the day after my epidural shot, (Thurs) so I brought it up to my doctor then. She agreed and put me on birth control pills. I started those on Friday night.

Do you see where this is going? Me neither. Oh yeah! My point, (yes, I did have one) is that in the last week:

• I've finished weening myself off a drug that was affecting my memory (neurontin)
  
• I've had an epidural shot (steroids)
• I've had a visit from Aunt Flo (hormones)
• I've started birth control pills (more hormones)

I'm not sure my emotional reaction to the girls was entirely because of what they were saying. I do feel awful about all the things there were bringing up. It was the first time they've done that to me, (probably won't be the last) but I do think there's some things going on chemically in my brain that really gave my emotions a big boost. Since they were negative emotions, it wasn't good. All day I felt awful, like I had a wet blanket weighing me down. Not only did my back hurt, but I felt queasy, achy, clammy... As the day progressed it worse, not better.

Saturday night the girls were sleeping over at my parents so we could go to a co-workers party. I begged off. Luckily, my husband knew I wasn't really feeling up to it. I think he was afraid I wanted him to stay home and babysit me. What I wanted & needed was some alone time. He took the girls to my parents house & went to the party. He sent me texts a couple times to make sure I was still okay, (and probably be sure I wasn't pulling a mind game on him). I had the opportunity to wallow in my pity party. I decided to have a drink, instead of a pain pill & things seemed to chill a bit for me. I watch some mindless TV on Hulu. It was pretty much what I seemed to need. Of course, I'm feeling a ton of guilt now; over not keeping the girls home, not going to the party with him, etc... because I don't give myself any slack.

This morning, Sunday, I was able to sleep in. We had NOTHING planned today, and I needed that. I'm much better. I've still got the black blob of unhappy in the back of my head, but it's not winning today. I'm not sure what to do, and maybe that's my problem. I'm at a crossroad of sorts, the stuff I'm doing for my back isn't working but I'm not sure what to do. Today I refused to take a pain pill till I really couldn't stand it anymore. (My personal protest against my body, I guess.) I also did two loads of laundry, cleaned up the kitchen, etc...stuff that isn't great for me, so 1:30 is pretty damn good, I think.
I'm hoping the big black blob of emotional pain was a "perfect storm" (drugs, steroids, hormones,) that won't show up again, but I'm seriously not sure. And upon reading this, I have to say, I'm playing this down a bit. The reason I started writing this is because I think I need help, but I'm not really sure what/how to do it. I've asked doctors time and again for a referral to a (mental) therapist and every time I get a "look in your insurance book" at best. I've had bad therapists, I don't want to make this situation worse. I get plenty of bad advice for free already. This bout I had yesterday, I had feelings that were...I wouldn't call them suicidal, I don't want to kill myself, and I wouldn't, but in a respect I feel like it wasn't entirely me. And they were really, really black. I don't know exactly how to describe it. It scared me. But like I said, I think it was the "perfect storm". I don't anticipate that happening again.

First World Problems

I can't seem to catch a break here people.
I don't know who I pissed off in my former life, but it must've been something good. I certainly hope I had fun doing it. And really, if that's the case, shouldn't I get to remember it? Who do I talk to about this?
Anywho, I digress (surprise!). Since, I last posted, 4 days ago, my pain had still not returned. A whole week! Woot! Yeah, don't get too excited, there are some reasons for that. Like, I wasn't moving much at all in the last four days. That fatigue thing I mentioned? Turned out it was the beginning of a virus. I don't miss a beat, I tell ya. Just to keep it interesting LittleSpeak got in the act too. Sunday night both her and I started running fevers. Let me tell ya, big fun to feel like crap, but have to take care of a kid who feels just as bad, if not worse? That's a level of fun that few get to experience.
On Monday, she was running 102 (ear thermometer, so probably 103) and I couldn't get it below 100 until 2:00 in the afternoon. I would've been more worried about it, but since I was running a fever (100, I avg 96, so that's pretty high for me) I wasn't really coherent enough to realize how it should be upsetting me. All she wanted to do was lay on me, which, I mean how does a mom say no to that. So we laid on the couch. I had the stream of Nick Jr. going, but after a while she just wanted to sleep. We laid there & sweated. Want to sit on my couch now? My virus, (Oh no, we can't have the same thing, we need to have something different so we can pass them back and forth.) included a post nasal/sore throat thing. Little's virus included a stomach bug. She never did get sick enough to throw up, but I know she wished she would on more than one occasion.
Tuesday, she was improving. Her fever was coming & going, she actually felt like eating a little and was happy to commandeer the TV. In other words, she wouldn't sleep. I was, of course, not that improved. I think it was rude for her to get better faster, considering I needed to nap and mope some more. Kids are like that though. Last night, I was running a fever when I went to bed, it's like a hot flash, but contagious.
Wednesday, I actually got dressed! I walked BigSpeak to school and took Little to gymnastics (Damn strait I took her! I need to wear that kid out!) My Mother In Law (MIL) was showing up today for a long weekend. It's Big's birthday weekend, so she thought she'd come to see us. My husband however, seemed to forget his mother was coming to visit and left the house in much of a state. My MIL comes to stay often enough that I'm sure she's seen the house in worse shape, but I prefer not to have the chores waiting for her when she arrives. (She's not good at leaving things alone.) I quickly scrambled to at least get the sheets on her bed changed. Check! And then to get the dishes out of the sink, which required unloading the dishwasher. Don't worry, I didn't get that far. The sheet changing was apparently "over the top" as once I got downstairs I felt my back spasm and familiar pains started down my right leg. I wanted to cry. I'd gone a whole week, more or less, without a pain pill! Granted, I spent a good part of that week lying down sick, but lying down has not been indicative of less pain, so I really thought the shots were helping. To have it potentially undone on the first thing I did is very disheartening.

I took pain pills, and laid on the couch as much as I could to try an help get it under control. I'm not dying or anything, but I'm pretty sure I'm not "off the pain pills" as I'd hoped. I'm not 100% for sure and Big's birthday party extravaganza is this weekend. Twenty 7 year old girls, glitter makeovers, fashion/dance show extravaganza! God help us all. I was feeling better when I signed up for this, I need to remember to stop doing that.

Yeah, I have a bit of a pity party going on these days. It’s frustrating at best. Part of me feels guilty when I get like this. No one is dying, or losing a limb. I have resources & support to deal with this never ending problem. I don't get to feel sorry for myself, there are so many people who have it so much worse. Upon thinking about it, I realized I need to allow myself some of this frustration without the guilt. What I have is a first world problem. No I'm not losing my home or dying, but that doesn't mean I don't have a sucky situation. Just because I don’t have the worst issue of everyone doesn’t diminish the suckatude.
I'm hoping that allowing myself to wallow a little in my suckatude (I love this word and will be using it often now) perhaps it will get some perspective and not last so long.

And maybe I'll catch a break one of these days.

Not Just Ruining Professional Baseball Careers

Had my last (3rd) epidural shot on Wednesday. That was 3 days ago. Honestly, I don't really seem to have any back pain now. The nerve pain is gone. Yup, you read that correctly. But before you start planning the party, you should know a few things.

1. I've been down this road before. From what I remember, I actually had a faster response to these shots last time, but they didn't last. In other words, I felt better, but I didn't heal. I'm reserving judgment this time.
   
2. I'm feeling better, and have more energy, but I'm tired. Like fatigued tired. My guess is that there hasn't been a ramp up to this new energy level. I have energy because it was all be routed to deal with pain. The pain was all the eff'ing time, so that's a lot of energy being put toward something. That does NOT mean I have energy to go run laps, it just means I don't have to sit down after each & every thing I do.
   
3. I have energy, but not strength. I want to do things, but I need to remember not to do them just yet. To pace myself. I should NOT be doing things that involve lots of bending over and/or lifting. Even though I feel like it's "probably fine." It actually probably isn't fine. Emptying the bottom of the dishwasher is one of the things I should avoid. Picking up laundry baskets also fall under this guise. Sounds like things that should be easy to avoid, but you might be surprised at how much they come up. I have lots of practice with avoiding these activities. This new found energy finds me awake staring at the sink of dishes because the dishwasher needs to be unloaded. Or the laundry basket that needs to be picked up. The call of those things can be surprisingly strong.
   

I have a whole new world of exciting symptoms I get to deal with now as well! Beside shrinking my testicles...or wait...I didn't have any testicles, maybe that's why they're so small now. ;-) I have the added bonus of a major break out, read: acne. Skin that is thin, dry & won't heal. Or won't heal very quickly. I'm scared to get a pedicure, and the thin, dry skin thing has made my heals a thing to be avoided, implying a pedicure is eminent. But I fear the beauty salon because of the healing thing and infection. My understanding is that steroids surpress your immune system, so I'm afraid of getting something serious (think MERSA, paranoid much?) and not having it heal. The skin on my face is a mess due to an acne break out & ingrown hair (chin hairs that have taken on new proportions, thank you testosterone increase,) that is out of this world. I assume these have stepped it up as a result of the steroids. I'm bloated, my face is rounder. So now, not just fat, but round faced, w/big ugly scabs & sores. Bet you're dying to see a picture now, aren't you? Fat chance.

I also have been dealing w/a very "fuzzy brain." I can't seem to remember things, or remember then clearly. That's not like me at all. Ironic, my brain was clearer when I was on the pain medication, than it is off. Go figure. My Twitter Dr. (who blows Dr. Google out of the water,) tells me that's more of an issue related to chronic pain, so maybe not from steroids, just from everything else. Not really a surprise. It's probably not new, I'm just trying to do and keep track of more, so I'm noticing it more is my guess.

I'm doing my best to keep some perspective on all of this. I am better, these things will pass & hopefully I will stay better, right? RIGHT?

An Afterthought

I'm not sure what to make of all of this. I wasn't going to write about it. There are some things you self censor about, and relationship issues with DaddySpeak are generally things I treat as off limits, unless/until resolved. Even then, there's usually a bigger issue that I'm talking about and the "resolved relationship issue" is a side story. But there's a trend going on here and I'm not sure what to make of it. Maybe you can help me make some sense of it. Sometimes, you're too close to the subject to see it clearly, forest for the trees and all.

In the last month DaddySpeak has regularly "let me down"about some (what I consider) fairly major stuff. He's had issues with scheduling for all three of my epidurals. Someone has to drive me home from the appointment. I also, should have someone around that day, just in case. He made it to the first one, though he had to call in sick, because he requested the next week off. I could tell from his reaction that some how this was my fault. It wasn't, not only did we talk about it over the phone, but there were texts involved. It was short notice, but he was involved in the decision. I wasn't too concerned, other than the response that implied it was my fault. I was frustrated, but you know, it happens.

The second epidural was also my fault because, I "didn't email the dates and therefore they don't exist if they haven't been sent in email." Yes, that's a quote. Again with the attitude that there is fault implied and how dare I expect him to take time off for this, again.

After that, I emailed the last date of the epidural to him. He swears I told him May 5. Maybe I did. I'm taking pain, nerve dulling & mild anti-anxiety drugs. I'm in a fair amount of pain consistently. The pain dictates my attention span more than I'd like to admit. It is likely that I will make some mistakes here and there. I would think I would've remembered noting May 5 (Cinco do Mayo) but maybe not. Anyway, on May 4th when it came up that the shot was not the next day, but the next week, I was told he could NOT take me on May 12 because he rescheduled a meeting that day based on being out on May 5. Um, OK. I don't know how important this meeting really was, maybe it was that important, but I'd be lying if I didn't admit my feelings were hurt. I worked it out with my parents to watch the girls AND take me to my appointment. I would deal with being home alone after the appointment. I've been fine the other two times, I suppose I'll be fine this time as well.

May 4th was also the date of my first physical therapy appointment since I started the epidural shots. The appointment involved mostly massage, and a little exercise. It didn't seem like much, but I was definitely feeling the affects of it by that night. I did not sleep well (i.e.--at all, more or less) that night from the pain. In the morning, when DaddySpeak was getting ready for work, I noted that he had already planned to take the time off. Since I was exhausted and hurting, perhaps he could stay home as planned. I was told no. He had things to do at work that day. This was the same day that after calling in the late morning to ask that he come home soon because I was NOT improving, Little jumped on my stomach. At that point, I called and TOLD him to come home NOW. I was seriously hurt and pissed.

So, my medical related needs are not the priority I feel like they ought to be with my husband. I can't say he hasn't been here for me in a big way on a day-to-day basis, because he has. And this has been going on forever. (In our FOURTH YEAR.) I get that. But like I said, I'd be lying if I didn't say my feelings were hurt.

On Mother's Day I don't think I had high hopes for much. But I did have a few small expectations. My expectations; sleeping in, a Starbucks mocha (preferable in bed, but not required) & breakfast (also preferably in bed, but not required). My mom's birthday fell on Mother's day this year, and as with all years we celebrated her b-day on Mom's day. This ends up meaning that once out of our house mom's day is pretty much over & it's my mom's b-day. It has always been this way, for me so I never gave it much thought, until I had kids of my own. I was going to host her b-day at our house this year, but because of my back issues my mom insisted she wanted it at her house. (I think she was secretly please, gave her something to fret over before hand and she could control the whole day to her satisfaction.) I think my hopes for mom's day for myself were small, but not small enough I guess. Little got up at dark o'clock. OK, I can't complain to much. She now sleeps in till SEVEN AM. No, it's not 10, but it's not 5:30 anymore either. She came in our room for snuggles. She wants to lay on MY side of the bed. (To get into stuff on my bedside table.) I convinced her to hit the middle of the bed, hoping she'd snuggle w/Daddy, and maybe I could go back to sleep. He tickles her till she gets annoyed and moves back to the edge of my side. Then he rolled over and WENT BACK TO SLEEP. Little will last, maybe, 30 min and then wants to get up for breakfast. I KNOW he was still awake when she started in to do this, but he feigned sleep. I GOT UP at 7:30 AM on Mother's day & made the kids breakfast. It wasn't anything fancy (toaster waffles). It's more about the point of it. This is like the one day of the year I ought to get to sleep in, right? Daddy got up at 11. Yeah, he totally slept in. When he got up he was all, "You let me sleep in till 11?" I just looked at him. I'm sure he did fall back asleep, but I KNOW he was awake when I got up with the girls. He then told me he'd be right back. He ran out and got me a mocha & an orchid. I guess, I should be grateful for the coffee & plant. It just felt so half-assed at that point, I was having trouble finding my graditude. Then I had to remind the girls it was mother's day & they had gifts they made for me at school. (It would have been nice if someone else had waited 10 minutes to get on the computer and reminded them for me. Maybe I'm getting into bitchy territory here, but I don't think it's much to ask for. I'm asking for some consideration.) Thank goodness for the schools or nothing would've happened for me. Because it was my mom's b-day, I then got to go to the grocery store 2x for the desert I was making. In the process, I saved DaddySpeak's butt, but reminding him to call him mom with the girls. (I did it for her, not for him.) Once at my mom's house, the guys all sit and watch TV, which means the women pick up, put together, feed the kids, and clean up. My dad did BBQ the meat, and do the dishes. But the dishes thing, was mostly because my SIL and I were in full protest by that time and refused to do them. I believe my SIL and I (and actually my BFF, which is another story) all should get a do-over on Mother's Day.

Today, I had my last epidural. This is the one he couldn't miss work because of a meeting. When leaving for work I noted to DaddySpeak that he would need to pick up the girls after work. That's when he sort of remembered I was having the shot. He never called today to see how I was, in fact, tonight he had been home for about 4 hours before he inquired. When he picked up the girls he said he was going to grab sometime to eat on the way home. I assumed he'd call when he figured out what they were getting to see what I wanted. He didn't. The girls came running up to see me and told me they had a surprise for me. They got me dessert. He "forgot to see if I wanted something." Obviously, I wasn't completely forgotten, dessert was procured. I wouldn't really think much of it all alone. The accumulation of these events is what's bugging me.

I get it, he's distracted. There's some stuff (position changes, people above him, not him,) going on at work, but he says it's fine. I don't know what to think anymore. I do know what I feel.
I feel like I matter very little right now.